Just Breathe

The past week has been incredibly stressful, and I'm not sure why.

Wait, I have an idea why...

You know how there are said to be five stages of dealing with grief or a loss? It's a fluid process, and people move through the stages at different rates, and sometimes in different orders. Well, I think I've been going through sort of a grieving process. It's been four months since I had my broken leg and surgery, and I ended up with a visit to the hospital for blood clotting issues and a mini-stroke, then sat in the neurologist's office while she confirmed my fears of Essential Tremor and/or Parkinson's Disease (by fears I mean that I am smart enough to know what that can do to an active and excited young person).

So, my automatic response to any news like that is to pretend everything is great, and picture the ten thousand things I will do to show the world that I will overcome. If there's one thing you can do to tick me off, it's telling me I can't do something.  Even though people didn't actually SAY I couldn't do things, as a special education teacher, my mind automatically went to all of the things that will happen and how my life will never be the same.

On top of that, my shaking has been pronounced enough to start causing some injuries if I'm not careful. On a completely related note, I am thinking of retiring from mascara...

So, back to the process. After making the list of things I am going to do to show whatever is going on who's boss, I then fall into a funk. Man, I could write a manual on myself by now. I guess I need to give myself credit- a lot of people spend thousands on therapy to figure out what I already have. I have seen myself go through it before, and knew it was coming. I embraced the funk (NEVER thought I'd type that sentence in my life, so there's a first!).

It hit me when I had to resign from my job. Until then, I had been on medical leave, and I could pretend that everything was going to be great. This was just something simple, and I would bounce back in no time. Problem is that I spend 8-10 days a month at a medical facility, I have to put great care into most EVERYTHING that I do, and it's just getting worse. I think that bounceback is going to take a while...

As far as the job is concerned, it wasn't fair to the students for them to keep wondering if I was returning. I got into teaching because of the kids, and I know more than anything that they need consistency. They need it in behavior support, and they need it in teachers and staff. I couldn't lead them on when I honestly didn't know when I would be healthy to return. I also didn't want to return too soon, and risk having a MAJOR setback from stress (heart attack or stroke). I'd sucked up the stress for too long, and I knew it would eventually get to me.  So, I know I'll find something new that might balance everything out, and for right now I am going to focus on getting back to a balance. Find the new me. Some cool new age jargon like that...

So, during this funk, I was sitting in a chair and staring out the window. I had days when I honestly didn't want to move. It wasn't depression- it was just time where I could slow my body down. My body has caused so many symptoms, it's like I am always on high alert to notice things. I needed time to slow my body down so I could really think. It turns out those days were useful. I was able to prioritize some things, and make a plan for moving forward.

Today, I rejoined the yoga world. I had wanted to do it for some time, but I wasn't able to modify a lot of the positions to accommodate my leg. It turns out the knee is a pretty vital piece of the body, and every position change affects it (as I found out right after surgery!). This morning I went to run errands, then returned to stretch out and let my mind wander.

Actually, the video I used focused more on my breathing. I had to laugh at first, because it seems like such a simple task. Don't get me wrong- I love yoga, and I enjoy how relaxed I feel afterward. I have done various routines for many years, but I've never seen a video that spent the first twenty minutes leading me through various breathing exercises. The narrator told me to really feel my breath, and welcome it into every cell in my body.

I believe in traditional medicine, but I also believe a lot of alternative strategies work as well. Together, I think you can make a great treatment plan for a patient. No matter what I was wanting the meds to do, I wasn't focusing on a plan that would help me maintain and build some strength, work on my balance, and promote deep breathing and stress relief.  I think I finally found my missing piece!

After the yoga routine (4o minutes!), I decided to head outside for a walk. I had only walked short jaunts around the neighborhood, so this would be the first time I headed out any longer. I am going to my physiatrist on Friday, and I wanted to be able to give her an idea of what my body could do. I know it seems odd when people think "it's been four months, so why are you still hurting?" Well, the doctor looked at my wound and said the scar isn't even healed all the way, so everything under it is still working. He gave me an injection for all the inflammation in my actual knee, which is keeping healing from happening. Then, there's the broken bone, which does take a while (especially in a weight-bearing bone). He told me he wouldn't clear me for the football field for 9-12 months, and from what he hears, a special education classroom is a similar environment (insert laugh here).

I walked at a moderate pace for about 25 minutes, and took a path outside the neighborhood. I remember getting fairly far down the road and thinking "I sure hope I can walk all the way back!" and "maybe this is why I stay close to home?"  My leg was starting to bug me, and I knew it was going to be an interesting night. I know I have to push myself, but I also have to balance that with not causing more damage. So, I headed home and put it up for a while.

We headed over to my best friend Robin's house, and played with the kids and ate pizza for dinner. I was glad to be able to chat with a good friend, and enjoy some family time. This reminded me of another crucial component of my plan to feel better: I need to schedule more social time. In the past four months, I've had a habit of being a bit of a recluse. All of the medical appts have exhausted me, and that made me not want to get out and actually talk to people. Add to that the fact that I have felt yucky a few of the days, and I am surprised I didn't scream when I saw daylight today. I know I need to get out more, and today starts my plan in that respect.

In these stages that I'm going through, I guess I'd be Acceptance by now. I've made a plan, so I guess that comes after realizing life probably won't go back to the way it used to be.  That's ok; we just have to adjust. 

And breathe.

Tremors

When I hear the word "tremors," I think of that really bad Kevin Bacon Movie that had those strange reptile-like creatures that attack a town. I guess that was all the attention I gave to the word, until the past few years.

Back in 2009, when I had Carly, some strange things started happening. I had always noticed my hand had a sort of tremor to it--people always commented on how I didn't need to be nervous, and I was always confused because I had no idea what they were talking about.  By 2009, apparently they were noticed enough to be called something. I had some issues with tremors and with weakness, and was given the dx of essential tremor. I had never heard of the term, and when I googled it, I only really got a clear picture once I saw that Katharine Hepburn had it, and that wasn't a great picture.  Essential tremor is often familial, and I had a feeling it was a fairly accurate diagnosis once I noted to the doctor that both my mother and grandmother (her mom) have the same tremor that has gotten pretty bad. Awesome...

Flash forward a few years. I dealt with a pretty significant injury, recovery from injury and illness, and returned to work and got a divorce. Life had seemed to smooth out, but it wasn't without notice of the tremor. During the time of my injury and illness, some of the symptoms were not as noticeable because I was on so many medications (and probably I was so drugged I didn't take note of the symptoms!).  It was really in the past three years that everything really got worse.

I remember having students constantly commenting about my hands that shook when I tried to teach and write on the board, and how much work it took for me to write neatly and hide these issues. I remember going in to meetings and knowing my hand was going to shake violently, so I would position it under my notepad or between my legs. I remember all of these things because I had to pay attention to my symptoms just to get by. I didn't want to deal with ANOTHER setback, so I just ignored it and coped the best I could.

It was during the past couple of months that I really began to notice it again. I had low calcium levels after my thyroidectomy, so they had been blaming my floppy and shaky hands on those levels. The truth is, my hands are pretty consistent no matter what the levels are doing at the moment, we just gave the calcium all the credit for causing such grief.  We looked at medication side effects and any other reason that this might be happening. Never mind I had already been told what it was a few years ago.  Maybe I just wanted someone to explain it away; to give it a reason that could be solved by a simple exercise or a pill. Not that I wanted an easy answer, but I didn't want to get a diagnosis in which there wasn't much at all that could be done.

I have had the tremors and spasms for quite some time, and also some issues with my balance. I have to wonder if that's the whole reason I broke my leg and tore my ACL in the first place- my balance has been TERRIBLE.  After having a nerve block for my surgery, it seemed to awaken the spasms and tremors in my left leg, which has made dealing with recovery absolutely terrible. I told the orthopedic surgeon about my issue, and was assured that it happened to many people as their nerves learn how to wake up again. That didn't explain the years of issues in my hands, and the domino effect of spasms through my body.

I went to therapy last week, and have been progressing pretty well. I was given a fairly simple exercise in which I had to use my balance on one leg to bend over and touch a ball to the top of a cone. It wasn't a very complicated task, but I couldn't do it. I became so frustrated, that I spent about 20 minutes trying the task before I FINALLY made it to ten successful attempts (and that was the therapist calling number 10 "successful" because he was tired of waiting). I guess until that moment, when I was almost in tears because my brain wouldn't let my body complete a task: THAT was when it all hit me. My body doesn't do what I tell it, and it terrifies me. There are tears streaming down my cheeks as I type this paragraph.

The first thing I think of is writing, oddly enough. I have had a little bit of a hard time with typing already, and have just had to do it in small doses. But handwriting has been another issue. Since I've been out of work, I haven't had to write nearly as many notes or paperwork that I normally do, so I didn't really realize the issues until I was trying to fill out a form at a dr's office. NOT pretty. I also noticed that I used to write in journals OFTEN before bed, to get my thoughts out before sleep. There's dust on the journal, because the last time I tried to sit and write my thoughts, it took too much effort to make the words look right.  That's something I really like doing, and I stopped doing it.

I don't want to sit here and complain about my life. Really, I'm not. I read a book by a woman with ALS, and she typed the entire book using the Notes program on her iPhone. She used one finger to type an ENTIRE book, and I seem like I am complaining about not being able to journal about my day's events. It's not that--I guess I am coping with the realization that something's off, and my life's not going back to normal. If essential tremor is the only diagnosis at work here, it's progressive. There's things that can help, but it doesn't mysteriously disappear. It often gets much worse.

Just looking at how I feel today, and what I have attempted to do in a fairly stress-free setting, I am seriously concerned about returning to work and back to the pace I maintain there. I am supposed to be visiting a new neurologist in the next couple of weeks, and I hope she will give me some advice on how I can maintain my independence. The major tasks haven't become a chore, but some of the fine motor things have gotten hard. Sitting and punching out paper dolls for Carly isn't really something that HAS to be done, but it is something I want to be able to do, and it's something that I don't think should take an hour to do. I want to be able to open doors and jars, and unbutton my own pants. I like the fact that I can go to the store, get the items I need, and bring them hope and put them away. I don't want to give up my independence, and I guess these changes have made me realize how important that independence is to me.

The intention of this post, I guess, is to give you a glimpse into my world. As awesome of a life that I have, with cute kids and a great supportive family, it can suck at times. There are days when I am exhausted because my muscles spent the night before hopping about, leaving me feeling like I've run a marathon. There's so much I want to do with my kids and for my kids, and it hurts me when my intentions can't meet my actions. And yes, even though life is grand right now, I am scared about the future. I am already sad that my children have had to endure a divorce, an absent father, and a mother with cancer. I really don't think they need to carry any more for a while.  I think they'd like a period where everything is calm, and mommy feels good. I push through and participate in activities, and hope that my body will recover in the night. It just seems like my days of making up for things are running out, and I am now paying the price for overdoing it.

I do have hope though, and that can be a very powerful thing. I know that I am a smart and resourceful person, and I'll use my abilities and resources to get me where I need to be. I have an incredibly supportive family that tries really hard to make sure that we are taken care of, and I have friends that offer support in many different forms. I know that there are worse things that can happen in life, but honestly I also know there are better things too. I guess I just have to maintain that hope in my future, and the faith that everything will work out alright. I already have two of the coolest children that I've ever been blessed to know, so I guess I'm ahead of the game. :-)

Can You Really "Have It All?"

I was driving to Nashville on Friday, and that gave me a lot of time to think.  Probably my favorite thing to do is drive when I have decisions to make; there's something about the road that lulls my brain into the space where thoughts are lucid and come so freely.

I had just stopped by the hospital to greet a new life. My best friend, Robin, had a baby boy, and I was very eager to hold him.  There's just about nothing cooler than holding a baby within twenty-four hours of the start of life.  He had that nice "new baby scent," and just sat there sleeping. My favorite thing is watching them try to open their eyes and look at you; they are still figuring out how to work the muscles, which makes for some interesting expressions.  I couldn't be happier for Robin, knowing that she had wanted another child for a while.  While I know that my baby days are over (thankfully!), I was excited to have another baby around. I like holding them and playing with them, then going home to sleep through the night in my own house... :-)

Here's the new little man, with his whole life ahead of him... Cute stuff! :-)



Back to the drive...

I was thinking about how much my life had changed in the past few months.  Thinking about surgery, some medical stuff, my job, life stresses, career paths, new relationships, and the steady calm that has started to take over where the kids are concerned.  Sure, there have been hiccups, but life has been overall "decent," and that can be a really good thing.

Then I had a thought- there's a lot of good stuff that can happen in the next year, and a lot of changes I can make to ensure I am leading a calmer life of purpose. Can I really "have it all?"  I hear people use that phrase, and I often wonder what that even means.  Surely life can't go perfectly 100% of the time? Or maybe I am just getting a bad deal out of this, and people really do have such seamless lives?

I spent Saturday with Jason, and had an absolutely fantastic day. We started off with breakfast at Cracker Barrel, went to The Frist Center to see some art (I had NEVER been before!), stopped in at Union Station Hotel to look around (again, had NEVER been there either!), ate lunch at Olive Garden, and went to see the Predators play that evening.  Even rounded out the evening eating leftover pizza and chocolate chip cookies on the couch.  Seems like a lot of pretty cool stuff, but I started thinking about all of that.

And I realized...

I think for a day, I had it all.  I spent a day of relaxing adventures (if that's possible) with someone I cared for.  Exploring art exhibits (even if they induced vertigo), enjoying the beautiful sunshine outside, taking a Saturday afternoon nap, eating pasta, great conversation, a rousing hockey game with a couple brawls, and feeling a hand reach for my during the game.  Strolling along Broadway, looking at the lights and listening to the chatter and music while headed to the car. Chatting about life while eating cookies on the couch. And falling asleep knowing that everything is going to be quite alright. Does it get any better?

I know every day isn't going to be like this. There are going to be ups and downs that happen, and that's just life. But I remember something that Robin told me a while back.  I was telling her a story about something that happened to me, and I wondered aloud if this stuff happened to other people. She said...

"You can make hugging a trucker in a Walmart parking lot sound exciting. You look for magic in everyday things, and that's why you find it. It has to be a special world- what you see through your eyes."

And she's right. I'm so thankful that I am conscious of these things around me. Because I notice them; THAT'S what makes it so special. Because I see the good that can happen, and notice the little moments, the glances and winks, and the warm hand holding mine on a crisp evening. I see the magic that happens in the every day, and that probably makes typical days seem extra special.

And with that mindset, I imagine I can have it all. I feel like, for the most part, I am getting there. There's a whole lot of possibility on the horizon, and I'm pretty excited about the ride. :-)

This is how excited I look after eating a funnel cake, and knowing that I haven't covered my body in powdered sugar...  I think he's excited I won't be tracking the "snow" back to his new car... ;-)